About 20% of children and adolescents with incident ESRD initiated treatment with a kidney transplant in 2016, whereas 80% were treated with dialysis.
Chart Explanation: In 2016, 1,112 patients aged 21 years or younger began treatment for ESRD in the United States; the incident count has decreased for both dialysis (by 12% overall) and transplants (2y%) since 2009. During 2016, 80% of children and adolescents (0- to 21-year-olds) were on dialysis, whereas 20% initiated ESRD therapy with a transplant.
The United States Renal Data System (USRDS) is a NIDDK- and CMS-sponsored national registry of all patients treated for end-stage renal disease (ESRD) in the United States. U.S. population denominators are determined through U.S. Census (www.census.gov) data. Tables from the USRDS annual report (United States Renal Data System, 2018
) are publicly available for download at www.usrds.org.
|Description of Measure||Incidence of treated end-stage renal disease (stage 5) in children & adolescents|
|Data Source||USRDS (NIDDK/CMS)|
|Type of Data Source||Public|
|Health Care System Data||No|
|Regional or National?||National|
|Demographic Group||Medicare-eligible U.S. citizens <22 years old with ESRD-related claims with known age, race/ethnicity, and gender|
|Numerator||Number of patients <22 years old with new diagnosis of ESRD|
|Denominator||U.S. resident population <22 years old from U.S. census from corresponding year|
|Definition of CKD||Stage 5, <15 ml/min per 1.73 m² with Medicare-eligibility for ESRD-related treatment|
|Primary Data Source Indicator||Number of patients reported to have a new diagnosis of ESRD, as indicated by first treatment (dialysis or functioning transplant)|
|Primary Indicator Method of Measurement||Claims|
|Frequency of Measurement (Primary)||Annual (cross-sectional)|
|U.S. Region Covered by Primary Variable||All|
|Period Currently Available||2016|
|Additional Data Items of Interest||Year, age (from date of birth), race/ethnicity (from Medicare 2728 form), gender (from Medicare 2728 form), assigned cause of ESRD (from Medicare 2728 form), BMI|
|Limitations of Indicator||Only those who are Medicare-eligible are captured and eligibility may be delayed; changes in 2728 form|
|Analytic Considerations||Denominators change with missing stratification variables|
References and Sources:
United States Renal Data System. 2018 USRDS annual data report: Epidemiology of kidney disease in the United States. National Institutes of Health, National Institute of Diabetes and Digestive and Kidney Diseases, Bethesda, MD, 2018.
United States Renal Data System. 2019 USRDS annual data report: Epidemiology of kidney disease in the United States. National Institutes of Health, National Institute of Diabetes and Digestive and Kidney Diseases, Bethesda, MD, 2019.