CDC Surveillance System: Incident Counts of Children and Adolescents with Treated ESRD by Modality

Incident counts of children and adolescents with treated ESRD^a,b by Age and Modality For 2009 United States Renal Data System
Age	Modality	2009	2010	2011	2012	2013	2014	2015	2016	2017	2018
0–4 years	Dialysis	224	225	214	262	238	238	257	244	235	220
0–4 years	Transplant	38	31	41	36	39	32	36	33	35	26
5–9 years	Dialysis	96	104	94	98	105	106	73	104	106	90
5–9 years	Transplant	51	42	45	48	50	48	48	41	31	51
10–13 years	Dialysis	151	150	167	137	146	128	123	163	135	162
10–13 years	Transplant	55	54	47	40	47	47	54	58	58	55
14–17 years	Dialysis	333	323	287	285	283	267	282	240	270	254
14–17 years	Transplant	83	72	84	91	70	59	85	73	95	90
18–21 years	Dialysis	658	607	607	539	595	516	528	521	449	492
18–21 years	Transplant	55	70	67	68	43	72	64	54	43	67

Footnotes:
^a Adapted from the 2020 USRDS Annual Data Report (United States Renal Data System, 2020).

^b As per the release of the 2015 USRDS report, the age range categories will be defined as shown above. Children and adolescents will be defined as individuals with less than or equal to 21 years of age from this point forwards.

About 24% of children and adolescents with incident ESRD initiated treatment with a kidney transplant in 2018, whereas 76% were treated with dialysis.

Chart Explanation:

In 2018, 1,218 patients aged 21 years or younger began treatment for ESRD in the United States; since 2009 the incident count has decreased for dialysis by 17% overall) and 2% overall increase for transplants. During 2018, 76% of children and adolescents (0- to 21-year-olds) were on dialysis, whereas 24% initiated ESRD therapy with a transplant.

The United States Renal Data System (USRDS) is a national registry of all patients treated for end-stage renal disease (ESRD) in the United States. It is sponsored by the National Institute of Diabetes and Digestive and Kidney Disease (NIDDK) and the Centers for Medicare & Medicaid Services (CMS) that reports prevalence of all treated ESRD in the United States. U.S. population denominators are determined through U.S. Census data. Tables from the USRDS annual report (United States Renal Data System, 2020) are publicly available for download.

Field	Data
Description of Measure	Incidence of treated end-stage renal disease (stage 5) in children & adolescents
Data Source	USRDS (NIDDK/CMS)
Type of Data Source	Public
Data Set	USRDS
Health Care System Data	No
Regional or National?	National
Demographic Group	Medicare-eligible U.S. citizens <22 years old with ESRD-related claims with known age, race/ethnicity, and gender
Numerator	Number of patients <22 years old with new diagnosis of ESRD
Denominator	U.S. resident population <22 years old from U.S. census from corresponding year
Definition of CKD	Stage 5, <15 ml/min per 1.73 m² with Medicare-eligibility for ESRD-related treatment
Primary Data Source Indicator	Number of patients reported to have a new diagnosis of ESRD, as indicated by first treatment (dialysis or functioning transplant)
Primary Indicator Method of Measurement	Claims
Frequency of Measurement (Primary)	Annual (cross-sectional)
U.S. Region Covered by Primary Variable	All
Period Currently Available	2018
Additional Data Items of Interest	Year, age (from date of birth), race/ethnicity (from Medicare 2728 form), gender (from Medicare 2728 form), assigned cause of ESRD (from Medicare 2728 form), BMI
Limitations of Indicator	Only those who are Medicare-eligible are captured and eligibility may be delayed; changes in 2728 form
Analytic Considerations	Denominators change with missing stratification variables

References and Sources:

United States Renal Data System. 2020 USRDS Annual Data Report: Epidemiology of kidney disease in the United States. National Institutes of Health, National Institute of Diabetes and Digestive and Kidney Diseases, Bethesda, MD, 2020.

Suggested Citation:

Centers for Disease Control and Prevention. Chronic Kidney Disease Surveillance System—United States.
website. http://www.cdc.gov/ckd