Most (72%) children and adolescents with prevalent ESRD had a functioning transplant in 2016.
Chart Explanation: The number of patients aged 21 years or younger who were being treated for ESRD in the United States showed minor decreases from 2009 to 2016 (10,238 and 9,721, respectively). In contrast to adults, the majority of prevalent pediatric patients (72%) have a functioning transplant.
The United States Renal Data System (USRDS) is a National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)- and Centers for Medicare and Medicaid Services (CMS)-sponsored national database that reports prevalence of all patients treated for end-stage renal disease (ESRD) in the United States. U.S. population denominators are determined through U.S. Census (www.census.gov) data. Tables from the USRDS annual report (United States Renal Data System, 2018
) are publicly available for download.
|Description of Measure||Prevalence of renal replacement therapy [dialysis (stage 5D)] in children & adolescents|
|Data Source||USRDS (NIDDK/CMS)|
|Type of Data Source||Public|
|Health Care System Data||No|
|Regional or National?||National|
|Demographic Group||Medicare-eligible U.S. citizens <22 years old with ESRD-related claims with known age, race/ethnicity, and gender|
|Numerator||December 31 point prevalent counts of patients <22 years old reported to have ESRD|
|Denominator||U.S. resident population <22 years old from U.S. census from corresponding year|
|Definition of CKD||Stage 5, <15 ml/min per 1.73 m² with Medicare-eligibility for ESRD-related treatment|
|Primary Data Source Indicator||Number of U.S. patients reported to have ESRD, as indicated by treatment (dialysis or functioning transplant)|
|Primary Indicator Method of Measurement||Claims|
|Frequency of Measurement (Primary)||Annual (cross-sectional)|
|U.S. Region Covered by Primary Variable||All|
|Period Currently Available||2016|
|Additional Data Items of Interest||Year, age (from date of birth), race/ethnicity (from Medicare 2728 form), gender (from Medicare 2728 form), assigned cause of ESRD (from Medicare 2728 form)|
|Limitations of Indicator||Only those who are Medicare-eligible are captured and eligibility may be delayed|
|Analytic Considerations||Denominators change with missing stratification variables|
References and Sources:
United States Renal Data System. 2018 USRDS annual data report: Epidemiology of kidney disease in the United States. National Institutes of Health, National Institute of Diabetes and Digestive and Kidney Diseases, Bethesda, MD, 2018.
United States Renal Data System. 2019 USRDS annual data report: Epidemiology of kidney disease in the United States. National Institutes of Health, National Institute of Diabetes and Digestive and Kidney Diseases, Bethesda, MD, 2019.