CDC Surveillance System: Point Prevalent Counts of Children and Adolescents with Treated ESRD by Modality

Point Prevalent Counts of Children and Adolescents with Treated ESRD by Modality^a,b For 2016 United States Renal Data System
Age	Modality	2009	2010	2011	2012	2013	2014	2015	2016
0–4 years	Dialysis	315	335	348	366	360	369	392	398
0–4 years	Transplant	298	287	294	308	310	291	291	283
5–9 years	Dialysis	217	226	238	252	238	230	206	216
5–9 years	Transplant	864	908	894	922	966	1,008	1,003	1,001
10–13 years	Dialysis	319	324	342	308	314	265	245	267
10–13 years	Transplant	1,097	1,072	1,096	1,103	1,123	1,186	1,199	1,238
14–17 years	Dialysis	746	701	674	692	670	593	564	483
14–17 years	Transplant	1,867	1,802	1,805	1,769	1,785	1,791	1,854	1,853
18–21 years	Dialysis	1,835	1,745	1,711	1,674	1,649	1,486	1,405	1,376
18–21 years	Transplant	2,680	2,739	2,741	2,676	2,596	2,593	2,608	2,606

Footnotes:
^a As per the release of the 2015 USRDS report, the age range categories will be defined as shown above. Children and adolescents will be defined as individuals aged 21 years or younger from this point forwards.

^b Adapted from the 2018 USRDS Annual Data Report (United States Renal Data System, 2018).

Most (72%) children and adolescents with prevalent ESRD had a functioning transplant in 2016.

Chart Explanation: The number of patients aged 21 years or younger who were being treated for ESRD in the United States showed minor decreases from 2009 to 2016 (10,238 and 9,721, respectively). In contrast to adults, the majority of prevalent pediatric patients (72%) have a functioning transplant.

The United States Renal Data System (USRDS) is a National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)- and Centers for Medicare and Medicaid Services (CMS)-sponsored national database that reports prevalence of all patients treated for end-stage renal disease (ESRD) in the United States. U.S. population denominators are determined through U.S. Census (www.census.gov) data. Tables from the USRDS annual report (United States Renal Data System, 2018) are publicly available for download.

Field	Data
Description of Measure	Prevalence of renal replacement therapy [dialysis (stage 5D)] in children & adolescents
Data Source	USRDS (NIDDK/CMS)
Type of Data Source	Public
Data Set	USRDS
Health Care System Data	No
Regional or National?	National
Demographic Group	Medicare-eligible U.S. citizens <22 years old with ESRD-related claims with known age, race/ethnicity, and gender
Numerator	December 31 point prevalent counts of patients <22 years old reported to have ESRD
Denominator	U.S. resident population <22 years old from U.S. census from corresponding year
Definition of CKD	Stage 5, <15 ml/min per 1.73 m² with Medicare-eligibility for ESRD-related treatment
Primary Data Source Indicator	Number of U.S. patients reported to have ESRD, as indicated by treatment (dialysis or functioning transplant)
Primary Indicator Method of Measurement	Claims
Frequency of Measurement (Primary)	Annual (cross-sectional)
U.S. Region Covered by Primary Variable	All
Period Currently Available	2016
Pending Data	2017
Additional Data Items of Interest	Year, age (from date of birth), race/ethnicity (from Medicare 2728 form), gender (from Medicare 2728 form), assigned cause of ESRD (from Medicare 2728 form)
Limitations of Indicator	Only those who are Medicare-eligible are captured and eligibility may be delayed
Analytic Considerations	Denominators change with missing stratification variables

References and Sources:

United States Renal Data System. 2018 USRDS annual data report: Epidemiology of kidney disease in the United States. National Institutes of Health, National Institute of Diabetes and Digestive and Kidney Diseases, Bethesda, MD, 2018.

United States Renal Data System. 2019 USRDS annual data report: Epidemiology of kidney disease in the United States. National Institutes of Health, National Institute of Diabetes and Digestive and Kidney Diseases, Bethesda, MD, 2019.

Suggested Citation:

Centers for Disease Control and Prevention. Chronic Kidney Disease Surveillance System—United States.
website. http://www.cdc.gov/ckd