Indicator Details — Children and Adolescents: Point Prevalent Counts of Children and Adolescents with Treated ESRD by Modalitya,b
Data Sources
 
Stratification and Year Choices:

  Source
  • USRDS

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Footnotes:
a As per the release of the 2015 USRDS report, the age range categories will be defined as shown above. Children and adolescents will be defined as individuals aged 21 years or younger from this point forwards.

b Adapted from the 2018 USRDS Annual Data Report (United States Renal Data System, 2018).




Most (72%) children and adolescents with prevalent ESRD had a functioning transplant in 2016.
 
Chart Explanation: The number of patients aged 21 years or younger who were being treated for ESRD in the United States showed minor decreases from 2009 to 2016 (10,238 and 9,721, respectively). In contrast to adults, the majority of prevalent pediatric patients (72%) have a functioning transplant.
The United States Renal Data System (USRDS) is a National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)- and Centers for Medicare and Medicaid Services (CMS)-sponsored national database that reports prevalence of all patients treated for end-stage renal disease (ESRD) in the United States. U.S. population denominators are determined through U.S. Census (www.census.gov) data. Tables from the USRDS annual report (United States Renal Data System, 2018) are publicly available for download.
 
FieldData
Description of MeasurePrevalence of renal replacement therapy [dialysis (stage 5D)] in children & adolescents
Data SourceUSRDS (NIDDK/CMS)
Type of Data SourcePublic
Data SetUSRDS
Health Care System DataNo
Regional or National?National
Demographic GroupMedicare-eligible U.S. citizens <22 years old with ESRD-related claims with known age, race/ethnicity, and gender
NumeratorDecember 31 point prevalent counts of patients <22 years old reported to have ESRD
DenominatorU.S. resident population <22 years old from U.S. census from corresponding year
Definition of CKDStage 5, <15 ml/min per 1.73 m² with Medicare-eligibility for ESRD-related treatment
Primary Data Source IndicatorNumber of U.S. patients reported to have ESRD, as indicated by treatment (dialysis or functioning transplant)
Primary Indicator Method of MeasurementClaims
Frequency of Measurement (Primary)Annual (cross-sectional)
U.S. Region Covered by Primary VariableAll
Period Currently Available2016
Pending Data2017
Additional Data Items of InterestYear, age (from date of birth), race/ethnicity (from Medicare 2728 form), gender (from Medicare 2728 form), assigned cause of ESRD (from Medicare 2728 form)
Limitations of IndicatorOnly those who are Medicare-eligible are captured and eligibility may be delayed
Analytic ConsiderationsDenominators change with missing stratification variables
References and Sources:
  • United States Renal Data System. 2017 USRDS annual data report: Epidemiology of kidney disease in the United States. National Institutes of Health, National Institute of Diabetes and Digestive and Kidney Diseases, Bethesda, MD, 2017.
    https://www.usrds.org/reference.aspx
  • United States Renal Data System. 2018 USRDS annual data report: Epidemiology of kidney disease in the United States. National Institutes of Health, National Institute of Diabetes and Digestive and Kidney Diseases, Bethesda, MD, 2018.
    https://www.usrds.org/reference.aspx
Suggested Citation:
Centers for Disease Control and Prevention. Chronic Kidney Disease Surveillance System—United States.
website. http://www.cdc.gov/ckd