As of December 31, 2017, 6he adjusted prevalence ESRD among 0- to 21-year-olds in the U.S. increased in 2014-2016 with 104 reported ESRD per million U.S. children and adolescents.
Age-adjusted prevalence was highest in male and in Native Hawaiian/Pacific Islander children and adolescents. Adolescent Native Hawaiian/Pacific Islanders (18- to 21-year-olds) had the highest prevalence (327 and 225 reported counts of ESRD per million U.S. children and adolescents).
Chart Explanation: Prevalence of children and adolescents being treated for ESRD continues to increase in the U.S. Adjustment of prevalence for race/ethnicity and gender show that, overall, 104 per million 0- to 21-year-olds were being treated for ESRD in 2014-2016. The prevalence was highest among 18- to 21-year-olds (225 per million) and lowest among 0- to 4-year olds (33 per million). Male children had higher adjusted prevalence than female children (121 vs. 88 per million), and Native Hawaiian/Pacific Islander children had higher adjusted prevalence of ESRD than white, African-American, Asian, and Native-American children (327 vs. 101, 134, 69, and 65 per million, respectively).
The United States Renal Data System (USRDS) is a NIDDK- and CMS-sponsored national registry of all patients treated for end-stage renal disease (ESRD) in the United States. U.S. population denominators are determined through U.S. Census (www.census.gov) data. Tables from the USRDS annual report (
United States Renal Data System, 2018) are publicly available for download.
| Field | Data |
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| Description of Measure | Prevalence of renal replacement therapy [dialysis (stage 5D)] in children & adolescents |
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| Data Source | USRDS (NIDDK/CMS) |
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| Type of Data Source | Public |
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| Data Set | USRDS |
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| Health Care System Data | No |
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| Regional or National? | National |
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| Demographic Group | Medicare-eligible U.S. citizens <22 years old with ESRD-related claims with known age, race/ethnicity, and gender |
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| Numerator | December 31 point prevalent counts of patients <22 years old reported to have ESRD |
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| Denominator | U.S. resident population <22 years old from U.S. census from corresponding year |
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| Definition of CKD | Stage 5, <15 ml/min per 1.73 m² with Medicare-eligibility for ESRD-related treatment |
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| Primary Data Source Indicator | Number of U.S. patients reported to have ESRD, as indicated by treatment (dialysis or functioning transplant) |
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| Primary Indicator Method of Measurement | Claims |
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| Frequency of Measurement (Primary) | Annual (cross-sectional) |
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| U.S. Region Covered by Primary Variable | All |
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| Period Currently Available | 2006–2016 |
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| Pending Data | 2017 |
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| Additional Data Items of Interest | Year, age (from date of birth), race/ethnicity (from Medicare 2728 form), gender (from Medicare 2728 form), assigned cause of ESRD (from Medicare 2728 form) |
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| Limitations of Indicator | Only those who are Medicare-eligible are captured and eligibility may be delayed |
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| Analytic Considerations | Denominators change with missing stratification variables |
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References and Sources:
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United States Renal Data System. 2017 USRDS annual data report: Epidemiology of kidney disease in the United States. National Institutes of Health, National Institute of Diabetes and Digestive and Kidney Diseases, Bethesda, MD, 2017.
https://www.usrds.org/reference.aspx
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United States Renal Data System. 2018 USRDS annual data report: Epidemiology of kidney disease in the United States. National Institutes of Health, National Institute of Diabetes and Digestive and Kidney Diseases, Bethesda, MD, 2018.
https://www.usrds.org/reference.aspx
