CDC Surveillance System: New Cases of Treated End-Stage Renal Disease (ESRD)

Incidence of Treated End-Stage Renal Disease (ESRD)^a by Most Recent Years and Year and Treatment United States Renal Data System
Year	Treatment	Most Recent Years
2000	Incident Dialysis	324.8
2000	Incident Transplant	6.8
2000	All Incident ESRD	331.6
2001	Incident Dialysis	334.1
2001	Incident Transplant	7.0
2001	All Incident ESRD	341.1
2002	Incident Dialysis	338.2
2002	Incident Transplant	7.1
2002	All Incident ESRD	345.3
2003	Incident Dialysis	344.3
2003	Incident Transplant	7.3
2003	All Incident ESRD	351.6
2004	Incident Dialysis	348.8
2004	Incident Transplant	8.2
2004	All Incident ESRD	357.0
2005	Incident Dialysis	353.2
2005	Incident Transplant	8.8
2005	All Incident ESRD	362.0
2006	Incident Dialysis	361.9
2006	Incident Transplant	9.6
2006	All Incident ESRD	371.5
2007	Incident Dialysis	359.7
2007	Incident Transplant	9.4
2007	All Incident ESRD	369.1
2008	Incident Dialysis	361.3
2008	Incident Transplant	9.4
2008	All Incident ESRD	370.7
2009	Incident Dialysis	370.2
2009	Incident Transplant	9.4
2009	All Incident ESRD	379.6
2010	Incident Dialysis	368.5
2010	Incident Transplant	9.5
2010	All Incident ESRD	378.0
2011	Incident Dialysis	359.5
2011	Incident Transplant	9.5
2011	All Incident ESRD	369.0
2012	Incident Dialysis	363.2
2012	Incident Transplant	9.2
2012	All Incident ESRD	372.4
2013	Incident Dialysis	372.9
2013	Incident Transplant	9.4
2013	All Incident ESRD	382.3
2014	Incident Dialysis	379.5
2014	Incident Transplant	9.6
2014	All Incident ESRD	389.1
2015	Incident Dialysis	392.2
2015	Incident Transplant	9.6
2015	All Incident ESRD	401.8
2016	Incident Dialysis	391.0
2016	Incident Transplant	10.6
2016	All Incident ESRD	401.6
2017	Incident Dialysis	386.5
2017	Incident Transplant	11.1
2017	All Incident ESRD	397.6
2018	Incident Dialysis	391.4
2018	Incident Transplant	11.8
2018	All Incident ESRD	403.2

Notes:

* Indicates that the result for this cell was suppressed because of imprecision due to a sample size that was too small or the standard error of the result being too large (>30% of the estimate).
95% confidence intervals, when available, are shown in parentheses.

Footnotes:
^a Adapted from the 2020 USRDS Annual Data Report (United States Renal Data System, 2020).

In 2018, 131,779 patients initiated treatment for ESRD, 127,925 of whom started on dialysis (3,854 started with a kidney transplant).

ESRD incidence increased by about 102% from 1990 to 2018 and the proportion of the overall incident population starting with a transplant (3%) has remained steady since 1990.

Chart Explanation:

In 2018, 131,779 patients initiated treatment for ESRD, 127,925 of whom started on dialysis (3,854 started with a kidney transplant). Shown is the increase in incidence of ESRD patients from 1990 to 2018, by initial treatment of ESRD. The incidence of ESRD increased by about 102% over this time period. Despite the increase in ESRD incidence, the proportion of patients initiating treatment with dialysis (~97%) rather than a transplant, has remained fairly steady since 1990.

The United States Renal Data System (USRDS) is national registry of all patients treated for end-stage renal disease in the United States. It is sponsored by the National Institute of Diabetes and Digestive and Kidney Disease (NIDDK) and the Centers for Medicare & Medicaid Services (CMS) that reports prevalence of all treated ESRD in the United States. U.S. population denominators are determined through U.S. Census data. Tables from the USRDS annual report (United States Renal Data System, 2020) are publicly available for download.

Field	Data
Description of Measure	Incidence of treated end-stage renal disease (ESRD) (Stage 5)
Data Source	USRDS (NIDDK/CMS)
Type of Data Source	Public
Data Set	USRDS
Health Care System Data	Yes
Regional or National?	National
Demographic Group	Medicare-eligible U.S. citizens with ESRD-related claims with known age, race/ethnicity, and gender
Numerator	Number of patients with new diagnosis of ESRD
Denominator	U.S. resident population from U.S. census from corresponding year
Definition of CKD	Stage 5, <15 ml/min/1.73 m² with Medicare-eligibility for ESRD-related treatment
Primary Data Source Indicator	Number of patients reported to have a new diagnosis of ESRD, as indicated by first treatment (dialysis or functioning transplant)
Primary Indicator Method of Measurement	Claims
Frequency of Measurement (Primary)	Annual (cross-sectional)
U.S. Region Covered by Primary Variable	All
Period Currently Available	2018
Pending Data	2019
Additional Data Items of Interest	Year, age (from date of birth), race/ethnicity (from Medicare 2728 form), gender (from Medicare 2728 form), assigned cause of ESRD (from Medicare 2728 form), BMI
Limitations of Indicator	Only those who are Medicare-eligible are captured & eligibility may be delayed; changes in 2728 form
Analytic Considerations	Denominators change with missing stratification variables Data for Prior Years (1990-1999) were prepared at an earlier time period.

References and Sources:

United States Renal Data System. 2020 USRDS Annual Data Report: Epidemiology of kidney disease in the United States. National Institutes of Health, National Institute of Diabetes and Digestive and Kidney Diseases, Bethesda, MD, 2020.

Suggested Citation:

Centers for Disease Control and Prevention. Chronic Kidney Disease Surveillance System—United States.
website. http://www.cdc.gov/ckd