In 2016, 124,675 patients initiated treatment for ESRD, 121,209 of whom started on dialysis (3,466 started with a kidney transplant).
ESRD incidence increased by about 93% from 1990 to 2016 and the proportion of the overall incident population starting with a transplant remained at ~2% over the entire period.
Chart Explanation: In 2016, 124,675 patients initiated treatment for ESRD, 121,209 of whom started on dialysis (3,466 started with a kidney transplant). Shown is the increase in incidence of ESRD patients from 1990 to 2016, by initial treatment of ESRD. The incidence of ESRD increased by about 93% over this time period. Despite the increase in ESRD incidence, the proportion of patients initiating treatment with dialysis (~97%) rather than a transplant, has remained fairly steady since 1990.
The United States Renal Data System (USRDS) is national registry of all patients treated for end-stage renal disease in the United States. It is sponsored by the National Institute of Diabetes and Digestive and Kidney Disease (NIDDK) and the Centers for Medicare & Medicaid Services (CMS) that reports prevalence of all treated ESRD in the United States. U.S. population denominators are determined through U.S. Census data. Tables from the USRDS annual report (
United States Renal Data System, 2018) are publicly available for download.
| Field | Data |
|---|
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| Description of Measure | Incidence of treated end-stage renal disease (ESRD) (Stage 5) |
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| Data Source | USRDS (NIDDK/CMS) |
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| Type of Data Source | Public |
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| Data Set | USRDS |
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| Health Care System Data | Yes |
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| Regional or National? | National |
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| Demographic Group | Medicare-eligible U.S. citizens with ESRD-related claims with known age, race/ethnicity, and gender |
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| Numerator | Number of patients with new diagnosis of ESRD |
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| Denominator | U.S. resident population from U.S. census from corresponding year |
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| Definition of CKD | Stage 5, <15 ml/min/1.73 m² with Medicare-eligibility for ESRD-related treatment |
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| Primary Data Source Indicator | Number of patients reported to have a new diagnosis of ESRD, as indicated by first treatment (dialysis or functioning transplant) |
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| Primary Indicator Method of Measurement | Claims |
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| Frequency of Measurement (Primary) | Annual (cross-sectional) |
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| U.S. Region Covered by Primary Variable | All |
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| Period Currently Available | 2016 |
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| Pending Data | 2017 |
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| Additional Data Items of Interest | Year, age (from date of birth), race/ethnicity (from Medicare 2728 form), gender (from Medicare 2728 form), assigned cause of ESRD (from Medicare 2728 form), BMI |
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| Limitations of Indicator | Only those who are Medicare-eligible are captured & eligibility may be delayed; changes in 2728 form |
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| Analytic Considerations | Denominators change with missing stratification variables |
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References and Sources:
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United States Renal Data System. 2017 USRDS annual data report: Epidemiology of kidney disease in the United States. National Institutes of Health, National Institute of Diabetes and Digestive and Kidney Diseases, Bethesda, MD, 2017.
https://www.usrds.org/reference.aspx
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United States Renal Data System. 2018 USRDS annual data report: Epidemiology of kidney disease in the United States. National Institutes of Health, National Institute of Diabetes and Digestive and Kidney Diseases, Bethesda, MD, 2018.
https://www.usrds.org/reference.aspx
